You go through the wars to become a warrior - keep standing strong brave little heart.
There are so many times where I sit there as a parent and try to get a better understanding of my son...I try to see the bigger picture, no matter what. But I also try to understand the medical point view and of course I do not always agree with what I am told about him. I know him and I am there 24/7 with him, they are not. Yes when the fever hits and things go south, we run to them but on a behavioral side of things, I do not always agree with their perspective...
I have been asked so many questions about him...so many...maybe I will talk to you about that in a future post, but for now here is an update on my little warrior...
On September 29, 2020, Orion had his heart repair surgery.
The doctors informed us that he should no longer be having tet spells, and that he should be good until about 5 - 10 years down the road, when he will need his pulmonary valve repaired.
